One of the best organisations for people like us is the Family Heart Foundation
How to get involved with the Family Heart Foundation organisation:
Sign up to their newsletter at https://familyheart.org/
Buy their merchandise and donate
Join their Facebook group at
https://www.facebook.com/groups/fhfoundation
24 September is FH Awareness Day
"FH Awareness Day was established in 2012 by the Family Heart Foundation (formerly the FH Foundation) to raise awareness of familial hypercholesterolemia (FH) worldwide. This annual event is held on September 24, during National Cholesterol Education Month."
Health books I own to help me manage my FH familial hypercholesterolemia
In alphabetical order.
Subject: FH
Getting Low in Familial Hypercholesterolemia: Reducing LDL-C and a Lifetime of Cardiovascular Risk
by Michael Davidson, MD, FACC, FACP, FNLA and Ann Liebeskind, MD, FAAP, FNLA (Kindle Edition)
Review: For about a dollar, you will find all the information you need here, authored by qualified professionals.
Familial Hypercholesterolemia: Insights into Diagnosis, Treatment, and Personalized Care
by Dr. Spineanu Eugenia
Review: A go to resource for some complex discussions and explanations about this condition
Subject: Cholesterol
Cholesterol cures
by the editors of Prevention Health Books. Medical Advisor: William P. Castelli, M.D.
Review: Hundreds of advice and information about nutritional aids to lowering your cholesterol.
Controlling cholesterol for dummies
by Carol Ann Rinzler with Martin W. Graf, MD
Review: Everything you need to know about cholesterol and how to manage high cholesterol in simple terms.
Culinary dictionary for hypercholesterolemia - Food encyclopaedia
by Cédric Menard
Review: An innovative, nutritionist-rated food inventory.
Cut your cholesterol
by Reader's Digest
Review: Written with the help of my own FH specialist, Dr David Sullivan from the RPA Hospital, an in-depth look at the science and methods behind cholesterol control.
Managing Cholesterol for dummies
by Simon Poole, MD and Amy Riolo
Review: Mentions FH several times, a comprehensive general guide to cholesterol management.
The Harvard Medical School guide to lowering your cholesterol
by Mason W. Freeman, M.D. with Christine Junge
Review: One of the most reliable sources of medical information is Harvard Medical School publications, and this is no exception.
Subject: Heart health
Beat the heart attack gene
by Bradley Bale, MD, Amy Doneen, ARNP, with Lisa Collier Cool
Review: Provides excellent and specialised information about heart health, by pioneers in the field.
Dr. Dean Ornish's program for reversing heart disease
by Dean Ornish, M. D.
Review: One of the few government -funded programs in America for treating heart health issues. A must buy.
Healthy heart, healthy brain
by Bradley Bale, MD, and Amy Doneen, DNP with Lisa Collier Cool
Review: Another helpful and dense publication from pioneers in heart health.
Heart care for life
by Barry L. Zaret, M.D. and Genell J. Subak-Sharpe, M.S.
Review: A reputable and carefully written heart care guide from Yale University Press.
Heart 411
by Marc Gillinov, M.D. and Steven Nissen, M.D.
Review: From one of the giants of American medical organisations, Cleveland Clinic, comes this thick and meticulous handbook.
Keeping your heart healthy
by Dr Boon Lim
Review: A slim volume to cover the basics and keep up to date.
Prevent and reverse heart disease
by Caldwell B. Esselstyn, Jr., M.D.
Review: A work by a leader in the field of heart disease management, with many recipes.
The BAKER IDI healthy cholesterol diet and lifestyle plan
by Baker IDI
Review: A colourful and user-friendly book with a focus on healthy recipes.
The CSIRO healthy heart program
by Dr Manny Noakes & Dr Peter Clifton
Review: An Australian publication by renowned doctors working for the government science agency CSIRO.
Subject: General Health
The China Study
by T. Colin Campbell, PhD & Thomas M. Campbell II, MD
Review: Perhaps the most important book written on nutrition in our lifetime. Based on incredible research.
The Okinawa Way
by Willcox and Willcox and Suzuki
Review: Lessons from the longest-lived people on Earth
The Blue Zones
by Dan Buettner
Review: Longevity knowledge
More help for familial hypercholesterolemia...
Organisations:
1. Family Heart Foundation https://familyheart.org/
2. FH Australasia Network - familial hypercholesterolaemia (athero.org.au/fh/)
3. What is Familial Hypercholesterolemia? | American Heart Association
What is Familial Hypercholesterolemia? | American Heart Association
4. Familial hypercholesterolaemia: symptoms, causes and treatments - BHF
Familial hypercholesterolaemia: symptoms, causes and treatments - BHF
5. FH AUSTRALIA - Voice and support for Familial Hypercholesterolaemia (FH)
FH AUSTRALIA - Voice and support for Familial Hypercholesterolaemia (FH)
6. What is FH? | Genetic Conditions | HEART UK
What is FH? | Genetic Conditions | HEART UK
7. Medscape InDiscussion: Dyslipidemia (podcast)
8. Lipid Insights (a National Lipid Association podcast)
Definitions
1. Familial hypercholesterolemia - Wikipedia
Familial hypercholesterolemia - Wikipedia
2. About Familial Hypercholesterolemia | Heart Disease, Family Health History, and Familial Hypercholesterolemia | CDC
3. Familial Hypercholesterolemia: Causes and Symptoms (clevelandclinic.org)
Guidelines
1. Look for GUIDELINES FOR THE DIAGNOSIS AND MANAGEMENT OF (csanz.edu.au)
Individuals
1. My Journey with Familial Hypercholesterolemia and Heart Disease (livingwithfh.blogspot.com)
2. Life with FH - (lifewithfh.com)
Make sure you watch a video of Nobel Prize Laureates on FH:
Dr. Micheal Brown and Dr. Joseph Goldstein at the 2024 Family Heart Global Summit.